Families participate in 5k to raise awareness about Huntington’s disease

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On Saturday, Sept. 21 the seventh annual Lansing Team Hope for Huntington’s Disease 5K run/walk took place at Granger Meadows Park.

On Saturday, Sept. 21 the seventh annual Lansing Team Hope for Huntington’s Disease 5K run/walk took place at Granger Meadows Park.

It was a warm Saturday morning at Granger Meadows Park, as the sun gleamed down on all the families and friends supporting the cause. The crowd was silenced as Dawn Perry countdown the start of the race for the participants. 

“Three… Two… One… Good luck!” said Perry, who coordinated the seventh annual Lansing Team Hope for Huntington’s Disease 5K run/walk.

Each year, Team Hope for Huntington’s disease holds an event for loved ones and others suffering from Huntington’s disease. This year’s event was Sept. 21. 

Team Hope 5K committee member Kristen Kanazeh said there are run/walks all over the state.

Huntington’s disease is a fatal genetic disorder that causes the progressive breakdown of nerve cells in the brain. It deteriorates a person’s physical and mental abilities, according to the Huntington’s Disease Society of America. 

Perry chose to follow in her aunt’s footsteps and get involved with the Huntington’s disease chapter in Michigan. 

“The chapter is really based in Detroit, but we have support groups throughout Michigan. Lansing happens to have a support group as well as an exercise class for people who have Huntington’s disease,” Perry said.

Both the support groups and exercise classes are helpful to those with HD and friends and family members close to those affected. 

“HD is a family disease, it’s not just one individual,” Perry said.

Each child of an affected parent has a 50 percent chance of developing the disease, according to the Huntington’s Disease Society of America. There is currently no cure or treatment which can halt, slow or reverse the progression of the disease.

“It means a lot to see the support in the community that gives to help the scientific research,” said Abby Perry, the mother of a 5K participant.

Families, friends and other members involved in Team Hope have raised over $157,000.

“It’s great to be part of something bigger than ourselves,” said 5K participant Bob George. “My wife’s mother had it and they found out she didn’t have it, but she’s still very involved. It’s nice to be a part of it and have the whole family supporting.”

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